Disclaimer Every family’s journey with INAD and every child’s experience is unique. While our story may echo parts of others, no two paths are ever the same. The emotions, timelines, and outcomes can vary greatly, and that’s okay. We share our experience in the hope that it offers insight into our world, our mission, and… Continue reading Finding Your Village
Disclaimer Every family’s journey with INAD and every child’s experience is unique. While our story may echo parts of others, no two paths are ever the same. The emotions, timelines, and outcomes can vary greatly, and that’s okay. We share our experience in the hope that it offers insight into our world, our mission, and… Continue reading The Diagnosis
Hello and Welcome My name is Stephanie Taylor, and I am the proud mum of two beautiful children–my daughter Mila (2y/old) and my eldest daughter Ella (4y/old). On February 1st, 2025, our lives changed forever when Mila was diagnosed with Infantile Neuroaxonal Dystrophy (INAD), a rare and devastating neurodegenerative disease. Like many parents, we had… Continue reading Welcome to the INAD Foundation
