Cure INAD UK is a UK-based foundation dedicated to supporting INAD research and family advocacy. We are honoured to stand alongside them to raise funds for the research team at University College London (UCL), who are working towards a cure for INAD.

Inspired by Warner Kays’ courageous journey, INAD Warriors raises global awareness of INAD and PLA2G6 gene disorders, supports affected families, and funds research toward the first treatments and, one day, a cure.

The NBIA Disorders Association provides information, advocacy, and vital support for families affected by Neurodegeneration with Brain Iron Accumulation disorders, including INAD. Our founders, Andrew and Stephanie, attended the 2025 NBIA Family Conference in South Carolina and saw first-hand the incredible community this organisation fosters. We are proud to work alongside them to share resources, strengthen connections, and bring hope to families around the world.

Rare Voices Australia is the national peak body for Australians living with a rare disease. They advocate for policies, research, and health system changes that improve the lives of those affected. As the driving force behind the implementation of the National Strategic Action Plan for Rare Diseases, Rare Voices Australia ensures that the needs and perspectives of rare disease patients and families are represented at the highest levels. We are honoured to partner with them in raising awareness, amplifying voices, and creating a better future for the INAD community.